Connect, Learn and Inspire

HOME PAGE January 8, 2013

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Welcome to MYCRAZYMIGRAINELIFE! Thank you for visiting.  This is a place where I will share whatever is in my heart with you.


 Migraines have made me who i am as a person, i wouldn’t appreciate life and health so much if they weren’t a part of my life. They have drained me physically, but mentally they have made me believe that if i can handle migraines i can get through anything. I do get tired of having migraine being part of my life but I will never get tired of living. I think helping others with pain will help me get through it, but will also help others by having everyone help each other. We have to work together to find ways of coping and living our best while having migraines. 
Crying myself to sleep most nights for a year from severe pain and then having an hour, a day, 2 days without pain, made me realize how grateful I have become as a person; Appreciating the little things in life and taking in the beautiful moments that I wouldn’t have noticed and felt so deeply before. Moments of time when everything is right and I feel pure joy. The quality of my life changed but so did I, and even though most days I am in pain, I still consider that to be a great day compared to the days I’ve had. Its not learning to live with migraines, its adapting to a new kind of way of living and living to the best of my abilities is my goal. You are allowed to feel scared or anxious or depressed but I let the feelings linger with me for a while and then they kind of float away slowly and a new day usually brings back my usual happiness and hopefulness. 
I keep on trying because life is too short to let pain get in the way. -Carrie, NHF
Working together to cope with migraines
                                                                                            (Posted on facebook from “The many faces of migraine” group)                    

8 Responses to “HOME PAGE”

  1. tlohuis Says:

    I can relate and I’m so sorry you are going through this, too. I’ve got the daily pain, but I’m taking a break from doctor chasing because I’m so sick and tired of wasting the very little money I have and my time, especially when I have zero energy and have already done so much doctor chasing, I just can’t take that part right now. Soon, I’ll have to get back to it if I ever want to get the answers I’m looking for.
    And, by the way, you have a great blog and it just takes time to get the followers, but they will come, as long as you keep blogging. You’re an inspiration to me and I’m sure to many others, as well. It’s like anything else, it just takes time. Before you know it, you’ll have so many followers you won’t be able to keep up with them all on a regular basis. By the time I reply to all my notifications, I’m worn out and can barely keep up, but once I do get caught up with that part, that’s when I go out reading others blogs and commenting and following others and most of them will then want to check out your wonderful blog. Trust me it will happen.
    I’ve not been doing so well, lately. I’ve had the flu, bronchitis, then I got over that after a few months for exactly one week and it came right back. I’ve been dealing with all that since Jan. 6th on top of all my “usual” ailments. No fun. But, it sure is nice that there are so many other wonderful blogs out here, and yours is one of them, so don’t give up and only do it when you feel up to it. There are no deadlines, that’s the beauty of it all. You do it when you feel up to it and that’s all there is to it. I hope you can find the doctor you are looking for. Good luck and stay strong. I’m always here if you want to talk, vent or whatever. Please never forget that. I’m so about to fall asleep, so I hope this makes sense because I’m way too tired to proofread before I hit send and I hate to no proofread first. I hope you can get some sleep tonight and hopefully those migraines will give you a break for more than just a few days at a time.

    • Tammy, you are the sweetest! ❤ I just really wanted to thank you so much. Your words of encouragement always make me feel better and make me happy. You are an inspiration to me as well. ❤ Thanks so much for the compliments for my blog. I feel like with school i don't have time to even look at my reader, but when I do find the time, I love reading other people's blogs and interacting with other special people like you! Its a great community here. love your poems on your blog, and I'm so sorry I never get to comment on any of them. I have to work on making time for that since you are amazing and I love how you write from your heart. Every time i read one of your poems, I feel like it relates so much to me as well. I know exactly what you mean now with the doctor chasing, because I feel so worn out and exhausted to do that right now because of the pain and emotional rollercoaster I am on. So for now i am taking a break from doctor chasing and looking to do things for myself now that I am done school. I really want to try things like Yoga, biofeedback and possibly seeing a nutritionist for the food-triggered migraines.
      I am so sorry you have been feeling so terrible Tammy. Thats a lot of things to deal with besides the 'usual' like you said and I am sure it is exhausting! I really hope you are feeling a bit better now!! The stress on our bodies from the pain/other things probably makes us more vulnerable to getting sick which is really not easy to deal with, its a vicious cycle. 😦
      Thanks again so much for your continuous support Tammy! You are so kind and caring and I am always so happy to hear from you. You stay strong too Tammy. Please know that I am always here for you too!! ❤

      • tlohuis Says:

        Hi Amanda, sorry I’ve been away for several days because I’m going through another rough patch. I’ve been sick with this bronchitis since January and am going to see a pulmonologist this week. Sure hope he has some answers, but I’m going with no expectations because no expectations equals no disappointment. Most doctors don’t seem to know squat when it comes to me and all my illnesses and diseases. I’m just a hot mess! Now, enough about me.
        I’m glad I can make you feel better, as that is my mission here. To let others know that they are not alone in their suffering. We may both suffer from different ailments, but hey, suffering is suffering, right? And it sucks big time. I’m just so sorry that anyone else has to suffer, especially you. I’ve had some migraines in my days, and they are absolutely horrible because you can literally do nothing, but lay in a dark room with your eyes closed, not move and pray the room doesn’t spin on you. It feels like there’s a big vice on your head that will just not let go. Then you have to worry about things like, do I have a brain tumor? Do I have an aneurysm? I mean the pain is so bad, you have to consider those things, at least I do.
        Thanks for your sweet comments about my blog and my poems. Glad you like them. don’t worry about that reader. This blogging is a full time job. I can barely keep up with my own page and like I said before, I take care of my page first and get all caught up by responding to all the comments which really pile up when I’m away for any amount of time due to illness and then I go out and read other wonderful blogs like yours. sometimes, I just take a day off from my blog and go out reading other blogs because there are so many wonderful blogs and people here. I had no idea when I started blogging. I didn’t even know what I was doing. A therapist just recommended it and I said okay, I’ll give it a try and I’m so glad I did.
        It is quite a roller coaster we ride and it’s a never ending vicious cycle, it really messes with one’s head, no pun intended in your case. I sure hope you can get some relief of some sort soon. Maybe things like yoga and biofeedback will get you some relief. you won’t know if you don’t try, right? That’s really all we can do, is to keep trying different things when we’re on a break from doctor chasing of which it sounds like we are both on a break at the moment. The stress most definitely makes everything, for everyone, much worse. Have you ever tried meditation? I really enjoy that, but it does take a lot of patience and practice. I don’t know if I’ve asked you that before or not. If I have just ignore me. I’ve got this damn ADHD and I can’t remember who I asked what. I can’t do yoga because of the fibromyalgia, but I can say I did sign up for classes and gave it a try. I did find a really nice yoga set on sale for a really great price and I bought it thinking I can one day try it at home, at my own pace and just kind of alter some of the moves to my ability because I really did enjoy it, it was just painful.
        I always enjoy talking to you, too. You really inspire me a lot and you really do have a nice blog. Please just try to stay strong and don’t ever give up, because I’ve done all those things and it only made things worse. I’m on the verge of giving up, again, but I’m trying really, really hard not to do that, ever again. As you know, the pain can just become unbearable and at times I feel so alone just lying here in my bed while my only family acts like I don’t exist. That hurts, my friend. I sure hope you don’t have to experience that because that is the very worst, when you feel your family has forgotten you in the room at the top of the stairs. I’m so glad that I met you here and I hope to get to know you even better and I hope that we can continue to inspire and encourage one another to not give up and to always keep going. At least you know I care about you, so don’t ever say no one cares because I do. You are a very strong and courageous woman, so full of life, yet. I’m glad to also know that you are here for me, as well. Don’t ever forget, anytime you want to talk or vent or whatever, I’ll be here to listen. do you ever skype? I skype with some of my friends here and it’s really a lot of fun and you really get to know someone. It’s just like they are in the same room with you. You should almost be done with school unless you are on the other side of the world, then I have no idea when you’ll be done, but I’m in the U.S. and it’s almost summer and school will be out this month. It amazes me how you make it through school with those migraines. Can’t imagine how you do that, but you should be very proud of yourself for not giving up. I’m just blabbing now and getting very tired and have to get up early in the morning for therapy. I see my pain therapist tomorrow and then I have nothing else for the rest of the day and I think I’ll just come right back home and get in bed. Last week I was so busy, I haven’t been that busy like that for years and I’m now paying the price. I hope you sleep well tonight, my dear friend and I look forward to talking to you some more real soon. have a pain free, great day tomorrow. Take care.
        Peace and hugs,

  2. tlohuis Says:

    You are so brave and courageous. What you have to say here is so true. I, too, try to do this too. I’m not always successful, but I do keep trying because like you said, life is just too short. I wish you the best.
    Peace and hugs,

    • Thank you so much Tammy! 🙂 Your comments always warm my heart. It is so difficult lately for me as well but somehow we always find some strength! I am back to daily pain right now and doctor ‘chasing’…I’ve been going through lots of swings with my emotions due to side effect from meds so I’m trying even harder to follow my advice i wrote above. I haven’t even been blogging in so long as school is just so hard to keep up with right now 😦 How have you been doing lately? I wish you all the best and I hope you are doing okay.

  3. ladymigraine Says:

    Hi Amanda ~ I’ve nominated you for a Liebster Award! If you would like to accept, click on the link below for the protocol. As a fellow migraine sufferer I understand it may take some time! Wishing you a pain free day ~ elizabeth

    • Elizabeth, Thank you so much! You have no idea how happy this has made me, it literally made my day! I started blogging about a year ago and i am loving it more and more. It would be so nice to be recognized for it and to have more followers to help and reach out to. I am in the middle of midterm exams now and right after i will definitely work on it! Is there a deadline for it? Again, thank you 🙂 I hope you are having a pain free weekend 🙂

      • ladymigraine Says:

        Sweetie, take your time. There is absolutely no deadline and it does require a bit of work, so wait until you’re feeling good and have nothing else going on! I’m glad it made you happy 🙂 I felt that way when I received mine also. Good luck on midterms! xoxo

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